American Epilepsy Society
The American Epilepsy Society promotes
research and education for professionals dedicated to
the prevention, treatment and cure of epilepsy. Membership
in the Society is made up of clinicians and researchers
investigating basic and clinical aspects of epilepsy,
and other health-care professionals interested in seizure
disorders.
http://www.aesnet.org
Epilepsy Foundation of
America
The Epilepsy Foundation will ensure
that people with seizures are able to participate in
all life experiences; and will prevent, control and
cure epilepsy through research, education, advocacy
and services.
http://www.efa.org
Family Caregiver Alliance
FCA's information library currently
includes nearly 100 different Fact Sheets and publications
on caregiving issues for families, health and service
providers, program developers and policy makers.
http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=572
Kids Health--An Epilepsy
Education
http://www.kidshealth.org/kid/health_problems/brain/epilepsy.html
National Center for Chronic
Disease Prevention and Health Promotion http://www.cdc.gov/nccdphp/epilepsy.htm
NIH Publications on Health
Issues and Diseases
http://www.ninds.nih.gov/disorders/epilepsy/epilepsy.htm
Support Groups
Adult Epilepsy Support
Group
The Epilepsy Support Group at University
Hospital meets on the third Thursday of every other
month from 5 p.m. to 7 p.m. Please call the University
Comprehensive Epilepsy Center at 973-(973) 972-3174
for information.
Pediatric Epilepsy Support
Group
The University Comprehensive Epilepsy
Center sponsors a support group for family members and
friends of pediatric epilepsy patients. The group facilitates
interaction among parents as well as provides information
about different types of treatment (medications, special
diet, and surgery), the social implications of epilepsy,
school choice, and occupational training. Please call
the University Comprehensive Epilepsy Center at 973-(973)
972-3174 for information.
Other Resources
The Bergen/Passaic County
Epilepsy Support Group
This organization has three adult support
groups open to people with epilepsy, family members,
and friends who are affected by the disorder. For more
information, call Michael Hickey at 973-962-0625 (Fax:
973-962-1054) or email: mjhickey@att.com
The Friends Health Connection
This organization provides one-to-one support for people
with health problems and their families. For more information,
call 1-800-48Friend or go visit their web site at: www.48friend.org
The Epilepsy Connection
Led by a group of dedicated, impassioned individuals
who have been not only affected by epilepsy in some
way, but want to make changes today that affect the
future for people with epilepsy.
For information, visit their web site at: www.epilepsy-connect.org
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